The Neuromuscular Disease Foundation
is pleased to present a live presentation and question & answer session:
"Navigating GNEM Through Self Care"
presented by:
Sarah Shira Emmons, MPH
Vice President, Patient Affairs and Community Strategies Jain Foundation
Sarah Shira Emmons earned a Master of Public Health degree from the University of Washington, School of Public Health, with a focus on Health Systems, and Population Health. Her research involved exploring behavior change theory through clinical and community-based programs serving oppressed communities and conducting qualitative research, investigating the clinical experiences of individuals with dysferlinopathy.
Ms. Shira Emmons leads and implements the Jain Foundation's patient identification and engagement efforts globally. She interacts extensively across sectors to expedite diagnostic support, inter-collaborator connection and to align all community members for successful clinical trials for dysferlinopathy. She develops and manages the foundation’s Dysferlin Registry, guides clinical research projects, designs engagement strategies, and conceptualizes initiatives to amplify the impact of the foundation.
SUNDAY, June 25, 2023
9 am PST/12 pm EST
Note: For this month, this will also be the patient HUDDLE
While NDF is bringing this important series of events to you at no charge, when you Support NDF programs you are helping make a positive impact and create meaningful change in the lives of those we serve.
Your generosity and support is crucial in helping us achieve our goals and sustain our programs, and we are grateful for your commitment to our cause. Without your contributions, we would not be able to provide the resources and services that are so vital to our community.
